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Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome

Together we strive to support families and professionals to aid in the healthy development of our children.

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Personal Stories

Greetings from Minnesota!

Our beautiful daughter Madeleine was diagnosed with Kabuki Syndrome...

Austin's Story

On December 15, 2003, we found out we were expecting our second child and...

Charles-Antoine's Story

Charles Antoine made an entry to this world a month ahead on august 25 th...

Daniel - A Mother's Thoughts

Hi, my name is Sue, and I'm the mother of a child with Kabuki. Our family...

Bella - The Light of our Lives

Greetings! We have 2 children, Bella - 4 years old, and Matthew...