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Kids with Kabuki Syndrome
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Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome

Together we strive to support families and professionals to aid in the healthy development of our children.

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Learn how Epigeneticsi relates to Kabuki Syndrome.

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Personal Stories

A Meaningful Life

Tara was diagnosed with Kabuki syndrome at 4 ½ years old.  She is now...

Introducing Calvin

Hi my name is Calvin and I am a 6 year old boy who lives it Michigan, USA...

Austin's Story

On December 15, 2003, we found out we were expecting our second child and...

Charles-Antoine's Story

Charles Antoine made an entry to this world a month ahead on august 25 th...

Daniel - A Mother's Thoughts

Hi, my name is Sue, and I'm the mother of a child with Kabuki. Our family...

Bella - The Light of our Lives

Greetings! We have 2 children, Bella - 4 years old, and Matthew...