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Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome
Kids with Kabuki Syndrome

Together we strive to support families and professionals to aid in the healthy development of our children.

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Personal Stories

Corey - Our Little Miracle

Corey is our eleven year old son. He was diagnosed with Kabuki syndrome...

Greetings from Norway!

Our family consists of Ingunn, Frode, Kristine 4 ½ years old and Andrea 3...

My Kabuki Syndrome Journal

Even though Kabuki has it’s up and downs, I never want to get rid of it....

Rothany's Story

Rothany is now age 11 and came into our world on the evening of August 8...

Introducing Calvin

Hi my name is Calvin and I am a 6 year old boy who lives it Michigan, USA...