Email Discussion Group
In addition to the information on this website, many families and professionals find it valuable to connect with others affected by the syndrome via an online e-mail discussion group. The Kabuki Syndrome Network hosts such a group through Yahoo! The e-mail group serves the purpose of allowing members to ask questions to the group and get quick responses. It enables members to keep up-to-date on what others are experiencing. Many topics are discussed, including health issues, schooling and transition to adulthood. The yahoo group archives past e-mail discussion threads to facilitate researching a particular topic.