Medical Management Family Package
The Medical Management Package has been a joint effort between Margot Schmiedge, founder and director of Kabuki Syndrome Network (KSN) and Peta Colton, founder and director of Supporting Aussie Kids with Kabuki Syndrome (SAKKS). It was developed to provide users with an easy to read and print alternative. This package is designed for educational purposes only. It is not intended for diagnosis or advice on medical conditions. It is not meant to endorse particular therapies, treatments and/or medication. Families should seek care from the professionals. In addition, this package will only be updated occasionally. The best place for current, up-to-date information is at the respective websites.
Please be patient, the files are very large.