Transition to Adulthood Summary

The years of transition from school to adulthood are difficult for everyone, but especially for young people with Kabuki Syndrome. Our young adults leave the structured environment of school and go out into the community to face its maze of public and private agencies. These agencies often have long waiting lists for services with different eligibility criteria. The most effective transition planning involves our children and us as leaders in mapping the educational experience and the years after graduation. Parents and young adults contributing as equal partners in the Individual Educational Plan (IEP) process is paramount to successful transition outcomes.

SkerkerParents and students will probably want to begin making serious plans when the student is beginning high school or around age 14. At this time, your child’s IEP planning meeting should include transition planning. Various individuals will collaborate with you and your child to develop a well-thought-out plan. The IEP team will designate leadership, responsibility, targets and timelines for proposed transition activities.

A cooperative effort will be required by a variety of agencies and individuals if the IEP is to become a successful vehicle for preparing your son/daughter with Kabuki Syndrome for employment and independent living. The primary responsibility of the IEP team should be to develop, implement, and evaluate the IEP as well as to see that necessary resources and support services are provided so that transition activities will be successful.