Past Events

Sat, Jul 9, 2016 (All day) - Sun, Jul 10, 2016 (All day)

We will make a weekend of it this year. For all families in the Pacific NW, and those willing to travel:

Brooklake Church @ 2pm
629 S 356th - Federal Way, WA

We will have a potluck gathering similar to last year for families just to meet casually and kids to play together. Bigby, Beil and King families will provide sandwich fixings and drinks as well as paper plates, napkins, etc. Please bring a side dish, fruit, veggies or dessert to share.

Fish Bowl at Bass Pro Shop @ 3pm

Fri, Aug 5, 2016 (All day) - Sat, Aug 6, 2016 (All day)

The Kabuki Karnival was another huge success, with a record 17 families attending.  This was also the first year that the event was extended to a 2-day event.  Even more significant, the Kabuki Karnival drew the attention of a local journalist!  Read her article here!


Location: Mukwonago, Wisconsin

Sat, Jun 25, 2016 (All day)

Join us for our 5th Annual West Coast Kabuki Syndrome Conference on Saturday, June 25, 2016

This year we will be providing Spanish translation so please pass the word to all the Spanish-speaking families living with KS.  

Sun, Aug 9, 2015 - 15:00

All are welcome - come spend the afternoon with other Kabuki families. The age range of the children with Kabuki Syndrome is from infants to adults.

When: Aug 9th at 3pm Where: South of Seattle/North of Tacoma at the Beil Residence - 20131 123rd Ave SE, Kent WA Contact: Stacy Bigby at 206.669.5195 or

Please let us know if you can attend!