Upcoming Events

East Coast Kabuki Gathering

Sat, Jun 27, 2015 (All day)

Dr. Hans Bjornsson and staff at John Hopkins University will be hosting a family and professional gathering  in Baltimore, Maryland.   We are in need of local families to help with some of the logistics.  If you are able to attend and live reasonably close, please consider helping!  For further information please contact Dana Levinson.

West Coast Kabuki Gathering

Sat, Jun 27, 2015 (All day)

Join us in 2015 for the 4th annual California gathering!  For further information contact Rick and Jodie Esponda.

Texas Kabuki Gathering

Fri, Oct 23, 2015 (All day) - Sun, Oct 25, 2015 (All day)

The second annual Texas Kabuki Gathering will take place at Peaceable Kingdom Retreat in Killeen, Tx. There is a small airport that flies directly into Killeen as well. It will be on October 23-25. We will have cabin-like sleeping arrangements and there is a lodge with eating facilities.We will have a ton of activities hosted by staff who specialize in special needs. Our kiddos will be able to do a ropes course and other outdoor activities.

Past Events

Sat, Oct 25, 2014 (All day)


Eight  families gathered for the first Kabuki Gathering in Temple,Texas.  For some of the families it was the very first time meeting others with Kabuki Syndrome.

Sat, Jun 28, 2014 (All day)


The Third Annual Southern California Kabuki Syndrome Gathering took place on June 28th, 2014 in sunny Torrance, California. 

Sat, Jul 12, 2014 (All day)



July 12th was the day of the Kabuki Karnival 2, held at the Orchard Hill AG Church in Mukwonago WI. We had 15 families from Wisconsin, Illinois, Ohio, Iowa, Michigan and even California!

Sun, Jun 16, 2013 (All day)