Practical Tools

Enjoy this delightful children's book series, Troy's Amazing Universe, authored by Sharon Tosten.  The main character, her son Troy, has Kabuki syndrome. Sharon wrote the books because although Troy has learning problems, he manages to keep up with the world around him with his unusual talent and cheerfulness.

Good apps for individuals with special needs can be hard to find - in particular, apps with simple menus to facilitate independence.  Following is a list of apps which have passed the test! 

Check out these items that help make life a bit easier.

Although most individuals with Kabuki are ambulatory, there are a few who are not. Also, some individuals who are mobile may not have the endurance for long walks. As a result, some parents find it useful to own a stroller for their youth/adult children. Here are a few options that are used by our families.

A few ideas to incorporate therapy swings in your home.

Numerous bike options.

Social story templates to aid in the introduction of your child to his classmates.