Practical Tools


Given that Kabuki is a complex syndrome with a multitude of medical, therapeutic, and emotional/behavioral issues for the whole family, there are tools that can help keep the family organized as well as making sure that all of the needs of the individual with Kabuki Syndrome are being met.

Hints for Parents

Visual Schedules

Give your child a feeling of control over his day by providing visual schedules at home and at school. Routine promotes communication and understanding.

Practical Tools Articles

Troy's Amazing Universe

TostenEnjoy this delightful children's book series, Troy's Amazing Universe, authored by Sharon Tosten.  The main character, her son Troy, has Kabuki syndrome. Sharon wrote the books because although Troy has learning problems, he manages to keep up with the world around him with his unusual talent and cheerfulness.

Last Updated: Saturday, February 13, 2016 - 16:03

Apps For Success

Good apps for individuals with special needs can be hard to find - in particular, apps with simple menus to facilitate independence.  Following is a list of apps which have passed the test! 

Last Updated: Friday, February 21, 2014 - 19:29


Check out these items that help make life a bit easier.

Last Updated: Friday, April 10, 2015 - 10:41

Stroller/Wheelchair Options

Although most individuals with Kabuki are ambulatory, there are a few who are not. Also, some individuals who are mobile may not have the endurance for long walks. As a result, some parents find it useful to own a stroller for their youth/adult children. Here are a few options that are used by our families.

Last Updated: Tuesday, October 16, 2012 - 17:05

Therapy Swing Options

A few ideas to incorporate therapy swings in your home.

Last Updated: Friday, April 11, 2014 - 11:45

Bike Options

Numerous bike options.

Last Updated: Saturday, September 19, 2015 - 21:00

Educational Aids

Social story templates to aid in the introduction of your child to his classmates.

Last Updated: Friday, May 6, 2011 - 19:11