Transition to Adulthood


The years of transition from school to adulthood are difficult for everyone, but especially for young people with Kabuki Syndrome. Our young adults leave the structured environment of school and go out into the community to face its maze of public and private agencies. These agencies often have long waiting lists for services with different eligibility criteria.

Hints for Parents

Volunteer to Career

Finding volunteer opportunities for your young-adult child may help determine his interests and strengths and help with transition planning.

Transition to Adulthood Articles

Meet our new 'Trende-setter'!

Trende is an online fashion/film/food company.  We are incredibly proud to announce that their model for this June is Jordan Reinman, a young woman with Kabuki syndrome! As stated on their website, "Jordan is an inspiring woman who has learned to love life no matter her circumstances and found that loving herself and living for others had the power to change her life.

Last Updated: Saturday, July 23, 2016 - 06:30

Finding and/or Creating Employment

Dr. Judith Gross, PHD, an assistant research professor at the Beach Center on Disability at the University of Kansas, is an expert on finding employment for people with disabilities. She provides valuable advice and information in her webinar presentation, "Employment Expectations and Resources."

Last Updated: Saturday, July 23, 2016 - 06:38

Transitioning to Adulthood Videos

Four videos that offer guidance to individuals, families and caregivers in the transition process from education to employment and from family home to independent living. Produced by the Nemours Children's Health System in Delaware, they were one of the recent recipients of the Impact Reward from Genetic Alliance.  As part of this award, two additional videos will be devoloped.

Last Updated: Friday, May 30, 2014 - 08:31

Personal Transition Accounts

Transitioning from childhood dependence to adulthood independence is something that all of us must eventually tackle. Included are stories from parents of young adults with Kabuki syndrome and some of those young adults themselves.

Last Updated: Thursday, October 9, 2014 - 11:25

Kabuki Syndrome - Transition to Adulthood

An indepth look at developing and implementing a transition plan for our children.

Last Updated: Monday, May 16, 2011 - 12:27