Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.

There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.

Contact KSN

If you require additional information or would like to request a Family Directory Membership, please contact:

Margot Schmiedge
8060 Struthers
Regina, SK
Canada S4Y 1J3
Email:margot@kabukisyndrome.com Ph# 306-543-8715

US Contact

Dana Levinson
Email: danarosenfeld@yahoo.com
Phone: 952 285-1399

To contact other Kabuki support groups:

Australia