Brief History of KSN

1997

  • Schmiedges begin first contacts with other families

1998

  • Compilation of published journal articles and creation of medical dictionary
  • First family directory is mailed
  • Website is created

1999

  • First newsletter is mailed
  • Inception of mailing list
  • KSN becomes incorporated in Saskatchewan

2000

  • KSN becomes a charitable non-profit organization within Canada

2005

  • First brochure is produced

2011

  • Current website is created
  • Brochure is updated
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