Kabuki Syndrome Network (KSN) was founded by Margot Schmiedge in 1997 and established as a charitable non-profit organization in Canada in 2000. KSN is run by volunteer parents from all corners of the world, within our own homes.

KSN’s goals are:

  • to act as a source of information on Kabuki syndrome
  • to facilitate networking amongst families and professionals
  • to support research activities

    Together we strive to support families and professionals so that we may be in the best position to aid in the healthy development of our children.

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