Individuals with Kabuki Syndrome will usually exhibit delays in multiple areas of development. Early intervention is key as research has shown that learning and development is most rapid during the early childhood years.

Hints for Parents

Don't Underestimate Your Child's Need to Chew!

Chewing has many benefits – it assists with attention, is calming and can stimulate the jaw muscles. There are many types of chew tubes and pencil toppers available.


Growth Hormone Therapy

"To our best knowledge, this is the first report on body proportions in Kabuki syndrome. It is shown here that various body ratios in KS clearly deviate from normally proportioned children. The key differences in body proportions in KS are that these children have larger heads and longer arms proportional to their trunks and longer upper arms proportional to their tibia length and feet. Knowledge of these body proportions in KS is valuable, since it can strengthen the clinical diagnosis and provide the means to follow up on the body proportions during growth and development."

Last updated: Monday, November 26, 2018 - 12:38

Why Homeschool?

Making decisions about a child’s education can be stressful, scary, exciting, frustrating, and everything similar and in-between. My husband and I weighed our options, and decided that homeschooling was the very best thing we could do for Joshua this year.

tags: Education
Last updated: Friday, April 11, 2014 - 14:51

Craniosacral Therapy

The Craniosacral System is intimately related to many systems of the body, including: endocrinei, neuromuscular, nervous, immune, lymphatic, and musculoskeletal systems.

Last updated: Wednesday, June 1, 2011 - 11:27

Music Soothes the Soul

Many parents have discovered that music accomodates learning!

Last updated: Wednesday, June 1, 2011 - 11:27

Kabuki Syndrome - The Visual Issues

Do you know the difference between eyesight and vision?

Last updated: Friday, September 30, 2011 - 11:23

An Appropriate Education

Navigating through the school system, leaves mom with some compelling questions and insights.

tags: Education
Last updated: Thursday, April 28, 2011 - 08:28

SOS - Signals Help for Sensory Oral Feeding and Swallowing Problems!!

Why is my child vomiting after each meal? Why is my child able to start to eat fine and then after a few minutes into mealtime he/she stops eating and starts crying? Find out the answers!

Last updated: Tuesday, October 16, 2012 - 17:22

The Impact of Gastrointestinal Issues on Oral Feeding

The impact of gastroesophageal reflux and constipation on feeding in children with Kabuki Syndrome.

Last updated: Friday, September 5, 2014 - 17:09

Promoting Positive Feeding Behaviors in Children with Kabuki Syndrome

Feeding problems in children with Kabuki Syndrome can seem overwhelming, but the good news is that almost any feeding problem can be overcome.

Last updated: Thursday, April 28, 2011 - 08:32

Understanding Behaviors

An indepth look at the sensory processes necessary for equilibrium.  Based on the conference, Becoming a Behavioral Detective, by Kim Barthel.

Last updated: Friday, September 5, 2014 - 17:13