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Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.

There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.

For a current site see one of the following:

http://allthingskabuki.org
https://www.kabukisyndromefoundation.org

Therapies

Summary

Individuals with Kabuki Syndrome will usually exhibit delays in multiple areas of development. Early intervention is key as research has shown that learning and development is most rapid during the early childhood years.

Hints for Parents

Button Independence

Many children with Kabuki have difficulty doing up buttons. There are handy gadgets available that could assist your child to become an independent buttoner.

Articles

The CAPD Model and Kabuki Syndrome

Hearing is not simply the process of the ear 'hearing' sounds, but also includes the ability to process that auditory information. This has implications for speech therapy.

Author(s):

Theresa Cinotti

Kim Tillery

tags: Speech Therapy

Last updated: Friday, April 11, 2014 - 14:51

Some Physical Therapy Perspectives on ‘Low Tone’and Kabuki Syndrome

Low tone, lax ligaments, sensory defensiveness....how do they affect the gross motor development of the child with Kabuki Syndrome?

Author(s):

Jean Wilson

tags: Physical Therapy, MusculoSkeletal

Last updated: Friday, September 5, 2014 - 17:11

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