If your child is not yet using many words, introducing PECS can enhance communication and decrease the level of frustration. Numerous studies have indicated that introducing PECS does not inhibit verbal speech.
Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.
There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.
For a current site see one of the following:
http://allthingskabuki.org
https://www.kabukisyndromefoundation.org