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Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.

There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.

For a current site see one of the following:

http://allthingskabuki.org
https://www.kabukisyndromefoundation.org

Facial

Summary

Kabuki syndrome acquired its name because the facial features of the children resembled the make-up of the actors in the traditional Kabuki theatre. Kabuki syndrome is often unrecognized in the newborn and it may take several years for the features to become obvious in the child.

Hints for Parents

Respite is Not a Four-Letter Word!

The most effective caregivers are those who recognize the need to recharge their own batteries.

Facial Articles

Four Patients with Oral Abnormalities

Oral Abnormalities

Author(s):

tags: Facial

Last Updated: Saturday, April 12, 2014 - 13:45

SOS - Signals Help for Sensory Oral Feeding and Swallowing Problems!!

Why is my child vomiting after each meal? Why is my child able to start to eat fine and then after a few minutes into mealtime he/she stops eating and starts crying? Find out the answers!

Author(s):

Linda Lane

tags: Facial, MusculoSkeletal, Feeding Therapy, Sensory/Behavior, GastroIntestinal

Last Updated: Tuesday, October 16, 2012 - 17:22

The Impact of Gastrointestinal Issues on Oral Feeding

The impact of gastroesophageal reflux and constipation on feeding in children with Kabuki Syndrome.

Author(s):

Lori Scott

tags: Facial, Feeding Therapy, GastroIntestinal

Last Updated: Friday, September 5, 2014 - 17:09

Promoting Positive Feeding Behaviors in Children with Kabuki Syndrome

Feeding problems in children with Kabuki Syndrome can seem overwhelming, but the good news is that almost any feeding problem can be overcome.

Author(s):

Polly Tarbel

tags: Facial, Feeding Therapy, Sensory/Behavior

Last Updated: Thursday, April 28, 2011 - 08:32

Kabuki Syndrome and Cleft Palate

Read about the possible implications of cleft palateⁱ and submucous cleft palate.

Author(s):

Dr. Takuya Iida

Dr. Susam Park

Dr. Eri Iida

tags: Facial

Last Updated: Friday, September 5, 2014 - 17:06

Important Dental and Orthodontic Issues for Children with Kabuki Syndrome

Important issues in dental development, oral health care, facial growth and development and orthodontic care.

Author(s):

Dr Bryan Williams

tags: Facial

Last Updated: Friday, September 5, 2014 - 17:07

Facial

Summary

Hints for Parents

Facial Articles

Four Patients with Oral Abnormalities

SOS - Signals Help for Sensory Oral Feeding and Swallowing Problems!!

The Impact of Gastrointestinal Issues on Oral Feeding

Promoting Positive Feeding Behaviors in Children with Kabuki Syndrome

Kabuki Syndrome and Cleft Palate

Important Dental and Orthodontic Issues for Children with Kabuki Syndrome

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