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Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.

There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.

For a current site see one of the following:

http://allthingskabuki.org
https://www.kabukisyndromefoundation.org

Sensory/Behavior

Summary

Many individuals with Kabuki syndrome have sensory processing disorder. This inability to accurately organize sensory information can lead to behavior problems.

Hints for Parents

Wrap ‘em Up!

Wrap your child in a blanket while providing firm hugs or wrestle together with a bean bag chair between the two of you. Deep pressure is generally calming and organizing.

Sensory/Behavior Articles

Anxiety Tips

At our recent East Coast Kabuki Conference in Baltimore, the issue of anxiety in our Kabuki children was raised and I offered examples of things my husband and I had done with our daughter, Kristin (30), throughout her development. Books or at least chapters are written on this, but I don’t want to overwhelm anyone. I decided to limit my initial writing to the top 10 that came to my mind!

Author(s):

tags: Sensory/Behavior

Last Updated: Tuesday, September 8, 2015 - 17:13

Kabuki and Autistic-type Behaviors

How do the developmental and social challenges of Autism compare to those of individuals with Kabuki syndrome?

Author(s):

Margot Schmiedge

Jen Morton

tags: Sensory/Behavior

Last Updated: Thursday, April 28, 2011 - 09:19

SOS - Signals Help for Sensory Oral Feeding and Swallowing Problems!!

Why is my child vomiting after each meal? Why is my child able to start to eat fine and then after a few minutes into mealtime he/she stops eating and starts crying? Find out the answers!

Author(s):

Linda Lane

tags: Facial, MusculoSkeletal, Feeding Therapy, Sensory/Behavior, GastroIntestinal

Last Updated: Tuesday, October 16, 2012 - 18:22

Promoting Positive Feeding Behaviors in Children with Kabuki Syndrome

Feeding problems in children with Kabuki Syndrome can seem overwhelming, but the good news is that almost any feeding problem can be overcome.

Author(s):

Polly Tarbel

tags: Facial, Feeding Therapy, Sensory/Behavior

Last Updated: Thursday, April 28, 2011 - 09:32

Understanding Behaviors

An indepth look at the sensory processes necessary for equilibrium. Based on the conference, Becoming a Behavioral Detective, by Kim Barthel.

Author(s):

Margot Schmiedge

tags: Sensory Therapy, Education, Sensory/Behavior

Last Updated: Friday, September 5, 2014 - 18:13

Sensory/Behavior

Summary

Hints for Parents

Sensory/Behavior Articles

Anxiety Tips

Kabuki and Autistic-type Behaviors

SOS - Signals Help for Sensory Oral Feeding and Swallowing Problems!!

Promoting Positive Feeding Behaviors in Children with Kabuki Syndrome

Understanding Behaviors

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