It was decided that KSN would put the production of a newsletter on hold. Virtually all articles in the newsletters were finding their own 'home' on the website. For instance, an article written about cardiac issues is filed under Health Issues/Cardiac. Family accounts are filed under Community/Personal Stories and news about research is filed under Research/Studies. In addition, our Home page has a listing of all the Latest Articles. The production of a newsletter, although neatly packaged into one document, was becoming somewhat redundant. What are your thoughts? Is the ever-changing internet forum changing how we receive support? Are newsletters a communication of the past? We'd love to hear from you!
Dare to dream, courage to adapt, wisdom to rejoice
Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.
There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.
For a current site see one of the following:
http://allthingskabuki.org
https://www.kabukisyndromefoundation.org
