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Notice: This site is no longer being actively maintained. While much of the information is still relevant, some of it has become out-of-date.

There are several Facebook groups. Just search "Kabuki syndrome" from within Facebook.

For a current site see one of the following:

http://allthingskabuki.org
https://www.kabukisyndromefoundation.org

Physical Therapy

Summary

Individuals with Kabuki syndrome typically exhibit low tone, also known as hypotonia. A physiotherapist is able to evaluate and develop a long-term plan to aid in strengthening the muscles.

Hints for Parents

Meds in a Straw!

For some children, swallowing pills is a difficult task. This handy straw with a med shelf may be the solution you need.